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I was told my bones were like that of an 80 year old when I was 32, I have severe Osteoporosis and since I already have Achondroplasia doctors here(India) don't even try to find what's causing my bone weakness; "Learn to live with what you've been dealt with" is a literal statement made by a doctor in an expensive hospital.
My spine broke, I've undergone various bone related surgeries all my life.
I decided to take matter into my own hands and built "Bone Health Tracker"[1] a FOSS bone density results tracker, I went to the front page of r/InternetIsBeautiful subreddit and through which I came across others like me who have suggested various rare diseases which I could be facing. Since then I've been working with NGOs helping those with rare diseases to help me find a doctor who can diagnose my disease and for the first time in my life I'm hopeful that I will be able to find what my disease is soon.
[1] https://bonehealthtracker.com/
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- When I was 32, I was told that my bones were like that of an 80 year old. I have built a web application to track bone health and monitor treatments for those like me. No sign-up, No personal data collected, Completely Free and Open-Source.
- Now Avanash can track his bones.
- When I was 32, I was told that my bones were like that of an 80 year old. I have built a web application to track bone health and monitor treatments for those like me. No sign-up, No personal data collected, Completely Free and Open-Source.
- Track your bone health, Monitor the progress of your treatments
- Everyone here can now track their immense bone strength, brilliant