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fasten-onprem
Fasten is an open-source, self-hosted, personal/family electronic medical record aggregator, designed to integrate with 100,000's of insurances/hospitals/clinics
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openemr
The most popular open source electronic health records and medical practice management solution.
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InfluxDB
Power Real-Time Data Analytics at Scale. Get real-time insights from all types of time series data with InfluxDB. Ingest, query, and analyze billions of data points in real-time with unbounded cardinality.
I had a similar experience when dealing with my chronic condition. Had to interact with almost a dozen different health portals, a couple of which were ok, the rest were awful.
I'm a software engineer, so I ended up creating my Personal Health Record (PHR) application, which I eventually open-sourced - https://github.com/fastenhealth/fasten-onprem
It's still a work in progress (and definitely not ready to be used as the primary source-of-truth), but I'm always looking for actionable feedback/contributors. I'd love to hear your thoughts
It’s total shit.
I’m rooting for something like this in the long term: https://github.com/openemr/openemr